Hi, my granddaughter (12), is still waiting on a formal diagnosis. We have had some tests done, now just waiting results. Recently, things seem to have gotten worse with her. We first experienced a problem with her in May 2016, since then we have been trying to get answers.
Up until the last (maybe) 2 1/2 mths, she has been very affectionate, love cuddles, (on her terms) and would love spending time with us. Now, since then, she doesn't want to interact with us, communicate, unless she has to and now, NEVER have any TOUCH at all, even an 'accidental' brush or slight touch of a finger, will make her 'cringe' and shy away. She says, 'people confuse me', 'I don't understand people', 'I don't understand emotions'.
Is it possible it is a worsening of the condition, a further part of the condition becoming prominent or is it her being (almost) a teenager and just choosing NOT to want us near her? Her mother is extremely upset and feels rejected and her heart breaks, everytime her daughter rejects her and can't understand what is happening and neither of us know how to help each other or our little girl.
I am struggling to hold the family together at the moment, and still no-one, seems to want to help, without the 'formal' diagnosis.