Antiphospholipid/Hughes syndrome support
All information here is provided by fellow patients from their own experience of APS. We are not doctors even though at times we know more than the doctors about APS!! Never follow advice given here unless your doctor agrees.However do bully him/her as doctors are notoriously under informed about this illness.
"More Sticky Blood", Kays new book about APS, available NOW!
All profits go to The Hughes Syndrome Foundation for research, awareness and support , I make no personal profit from my writing whatsoever.
WARNING USING THIS SITE TO GATHER E MAIL ADDRESSES IS NOT TOLERATED. IF YOU ARE E MAILED BY ANYONE THROUGH YOUR PROFILE FROM THIS SITE PLEASE TELL ME BY E MAILING kaythackray@aol.com SOME UNSCRUPULOUS CHARACTERS TRY TO USE THIS SITE AS A RECRUITING GROUND. IF IN ANY DOUBT DO NOT REPLY BUT REPORT TO ME AND I WILL SORT IT OUT.
This Foundation supports people with APS wherever they live in the world and is based at St Thomas Hospital London where Dr Graham Hughes developed the tests for this illness and first described it fully in 1983.
A forum for people suffering from APS or their friends and families to discuss their problems/ ask questions.
The forum is hosted by Kay Thackray author of "Sticky Blood Explained" and "More Sticky Blood". I only say this so you know its me, not to "blow my own trumpet" I promise!My e mail address is kaythackray@aol.com
New members please post your questions etc and they will be approved by me,or my assistants, then put on the board .As soon as I feel we have got to know you I will make sure you can post messages freely without any approval first.This is usually pretty soon after you join us. This is only a precaution as we had a few odd postings a while back and if it happens now I can delete them rather than them just springing up on your forum!!
I do consider that whilst I set up this forum, it still belongs to everyone who uses it so they can freely talk about things and advise each other without any interference from me.There are no rules to follow, nothing within reason that can't be discussed here and no dress code!! lol
It's a friendly place for people with APS to feel at home.
I hope this will be a laid back place to meet, chat discuss problems, and seek support just as the Delphi forum previously run by Mark Waxman always used to be. That forum saved my life once I hope this one can save a few as well.
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