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My new journey with the big C   Quit Stories and Journals

Started 11/11/16 by Rich (lexx0); 196433 views.
Triff (breathefree)

From: Triff (breathefree)

7/2/19

Thnaks Rich for describing the normalacy of it all.I must have gone onto my back and woke with the screaming desire to jump out of bed too.I lay with my rescue inhaler thren moved tothe meds beside the bed to slow it all down.I bet I would rip all the stuff off in panic when you get tothat cant breathe moment.Two hours later I had some control but today I am zonked. I will see what exactly they want before I worry or give up without trying.being on my own makes it worse so perhaps find someone to be here just incase

Triff (breathefree)

From: Triff (breathefree)

7/8/19

Just checking in to see what July brings us all.For me an amazing little step forward and at the same time loss of the support I did have.Its very cold and I am doing my best to stay warm.I miss my wee fluffy companion .

Triff

Rich (lexx0)

From: Rich (lexx0)

7/9/19

Oh so your down under in winter time ;(.  We're having a 90F heat spell with thunderstorms daily.  I ride between cloud bursts, although not successfully.  Best days are always 'hospital visit' days and after 4hrs there when I get home with takeout, the rain starts 15 mins after eating ;p

Aye, I can't imagine losing your family AND your furry baby too.  Hope things work out for you. The better you get I'm hoping the lessor of the other panic style attacks you will get ;(  Keep in touch.  I'm still waiting over a week just o make a gastro appt, they won't return my call and my doc leaves in 3 weeks for another hospital.

Rich

Triff (breathefree)

From: Triff (breathefree)

7/17/19

Hi one thing I miss is having the fire lit for me in the morning.Its quite cold and frosty too.

I got a letter today to say my test equipment will be sent 1st week of August so I will be good and use it in the hope it can help me get more treatment etc to improve thing for me.

I bet now its great riding the breeze in summer for you.My thoughts to you both and I wonder if your family has departed too?

Triff

Rich (lexx0)

From: Rich (lexx0)

7/22/19

Good news to hear Triff.  I hope the equipment gets you somewhere.  Linda seems to be getting better although she will never get a shoulder replacement, the surgeon says she will not be able to tolerate metal and plastic as those attract and hold things that will cause infections which would lead to life threatening things and prob loss of limb. The only recourse is another 3 months of pain meds. At least the last shot seemed to give her a lot less pain.  Still, she grips about not being able to drive.

Prob here lately is its 90F or higher and too hot to ride for me, or it rains all day like today.  An hour in that heat and I start to get faint.  My arms are burnt from the sun and I have a nice white watch spot ;D  I havent' been wearing gloves this summer or my hands would be white too ;p  Its raining now, I may go out when it slows down to a sprinkle though.  I am thinking about going to the dealer and trading up to a bigger bike soon though. On the interstate mine shakes at 60mph or higher.  I want to go further than tripping around town.

My full physical is Aug 1st.  Find out how they are going to treat Crohns then.  Always something anymore. Damn when I smoked I felt great, now just blah, but guess I'm very lucky to be 2 years post C surgery and still free of that.

Love you sweetie, hope you get better really fast.

Rich

Triff (breathefree)

From: Triff (breathefree)

7/26/19

Oh Rich that sounds positive with Linda feeling better after pain meds and last shot gave relief.Just having a lowering of pain would be enough to give her a little energy or feel better.I am sorry she cant drive but being alive and feeling a wee bit better is wonderful for all of you.

I hate not driving but choose not to due to the meds I may take during attacks.Once it gets to warmer weather perhaps things will change.I give thanks each day for just being here and the only thing at the moment was the continual cold and fog.Today I am grateful it was sunny for a few hours.

Feeling blah is funny really isnt it?You would think you would be so proud of the achievement of the life you have and all the work those doctors have done but probably your letterbox is still full of payments for your care.

As an outsider I sure feel proud of both of you battlers who somehow have navigated such a terrible and painful journey against the big C .You are survivors and you deserve a medal for all you have done even before you had healed.

Boy now that if you

I am expecting my testing first week in August.Lets see if it provides information enough to get me more help.

Triff

Triff (breathefree)

From: Triff (breathefree)

8/7/19

How did your appointment go re your Crohns?

Two years free of cancer is great to celebrate too

I had my test last night and even obliged by having a severe attack early this AM.So we are hoping they learn somethig and may be able to help me more.

Another cold snap due at the weekend   which does not help the breathing much at all.

Keep us up with your survival and battles t obe the best you can.

Triff

Rich (lexx0)

From: Rich (lexx0)

8/8/19

No appt yet, my doc is ill so have to wait.  No rush on treatment for it yet.

I just returned from a funeral of a neighbor. He passed of AML, same thing that Linda has. What are the odds of two neighbors getting the rarest blood disease?  I'm wondering if radon gas contributed as I had to pay for radon removal when I sold the house 14 years ago.

Good luck on the tests and throw on another blanket to keep warm. 

My mother broke another shoulder socket. Gotta travel back down in 4hrs for the surgery.  I took her to the hospital a day before.  

Then I stopped for gas in WV, I noticed cigarettes were still only $4.88 a pack for marboros.  Holy cow, they are $8 a pack here in my state.  I longingly looked at that price for about 10 secs ;p

Take care sweetie.

Rich

Triff (breathefree)

From: Triff (breathefree)

8/10/19

Wow Rich to people beside each other with same thing.It must be hard knowing Linda cant recover her shoulder but your mother still gets mended.I would expect Linda to be growly about that.

Its still so cold and if it wasnt for my most amazing neighbour who comes down daily to light and tend my fire,brings in wood and checks to see if I am Ok i do not believe I would make it through winter on my own.

I thank God or who ever for the special care this family man gives me.I wake misrable some days but then I am truly grateful that someone has lit the fire and the jug is boiling.One day he made my pot of tea and I sat at the table.He sat quietly until I felt better.

Just like this forum a listening ear and support can be so healing and supportive.

Heres hoping you get an OK from your doc.No report for me yet just the daily "I can make it step by step"

Hugs and thoughts to you both

Triff

karenvans

From: karenvans

8/26/19

Rich: So sorry about your Mom let us know how surgery goes. Glad to hear that you and Linda are hanging in there.

You both are amazing!

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