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My new journey with the big C   Quit Stories and Journals

Started 11/11/16 by Rich (lexx0); 225073 views.
Rich (lexx0)

From: Rich (lexx0)

7/22/19

Good news to hear Triff.  I hope the equipment gets you somewhere.  Linda seems to be getting better although she will never get a shoulder replacement, the surgeon says she will not be able to tolerate metal and plastic as those attract and hold things that will cause infections which would lead to life threatening things and prob loss of limb. The only recourse is another 3 months of pain meds. At least the last shot seemed to give her a lot less pain.  Still, she grips about not being able to drive.

Prob here lately is its 90F or higher and too hot to ride for me, or it rains all day like today.  An hour in that heat and I start to get faint.  My arms are burnt from the sun and I have a nice white watch spot ;D  I havent' been wearing gloves this summer or my hands would be white too ;p  Its raining now, I may go out when it slows down to a sprinkle though.  I am thinking about going to the dealer and trading up to a bigger bike soon though. On the interstate mine shakes at 60mph or higher.  I want to go further than tripping around town.

My full physical is Aug 1st.  Find out how they are going to treat Crohns then.  Always something anymore. Damn when I smoked I felt great, now just blah, but guess I'm very lucky to be 2 years post C surgery and still free of that.

Love you sweetie, hope you get better really fast.

Rich

Triff (breathefree)

From: Triff (breathefree)

7/26/19

Oh Rich that sounds positive with Linda feeling better after pain meds and last shot gave relief.Just having a lowering of pain would be enough to give her a little energy or feel better.I am sorry she cant drive but being alive and feeling a wee bit better is wonderful for all of you.

I hate not driving but choose not to due to the meds I may take during attacks.Once it gets to warmer weather perhaps things will change.I give thanks each day for just being here and the only thing at the moment was the continual cold and fog.Today I am grateful it was sunny for a few hours.

Feeling blah is funny really isnt it?You would think you would be so proud of the achievement of the life you have and all the work those doctors have done but probably your letterbox is still full of payments for your care.

As an outsider I sure feel proud of both of you battlers who somehow have navigated such a terrible and painful journey against the big C .You are survivors and you deserve a medal for all you have done even before you had healed.

Boy now that if you

I am expecting my testing first week in August.Lets see if it provides information enough to get me more help.

Triff

Triff (breathefree)

From: Triff (breathefree)

8/7/19

How did your appointment go re your Crohns?

Two years free of cancer is great to celebrate too

I had my test last night and even obliged by having a severe attack early this AM.So we are hoping they learn somethig and may be able to help me more.

Another cold snap due at the weekend   which does not help the breathing much at all.

Keep us up with your survival and battles t obe the best you can.

Triff

Rich (lexx0)

From: Rich (lexx0)

8/8/19

No appt yet, my doc is ill so have to wait.  No rush on treatment for it yet.

I just returned from a funeral of a neighbor. He passed of AML, same thing that Linda has. What are the odds of two neighbors getting the rarest blood disease?  I'm wondering if radon gas contributed as I had to pay for radon removal when I sold the house 14 years ago.

Good luck on the tests and throw on another blanket to keep warm. 

My mother broke another shoulder socket. Gotta travel back down in 4hrs for the surgery.  I took her to the hospital a day before.  

Then I stopped for gas in WV, I noticed cigarettes were still only $4.88 a pack for marboros.  Holy cow, they are $8 a pack here in my state.  I longingly looked at that price for about 10 secs ;p

Take care sweetie.

Rich

Triff (breathefree)

From: Triff (breathefree)

8/10/19

Wow Rich to people beside each other with same thing.It must be hard knowing Linda cant recover her shoulder but your mother still gets mended.I would expect Linda to be growly about that.

Its still so cold and if it wasnt for my most amazing neighbour who comes down daily to light and tend my fire,brings in wood and checks to see if I am Ok i do not believe I would make it through winter on my own.

I thank God or who ever for the special care this family man gives me.I wake misrable some days but then I am truly grateful that someone has lit the fire and the jug is boiling.One day he made my pot of tea and I sat at the table.He sat quietly until I felt better.

Just like this forum a listening ear and support can be so healing and supportive.

Heres hoping you get an OK from your doc.No report for me yet just the daily "I can make it step by step"

Hugs and thoughts to you both

Triff

karenvans

From: karenvans

8/26/19

Rich: So sorry about your Mom let us know how surgery goes. Glad to hear that you and Linda are hanging in there.

You both are amazing!

karenvans

From: karenvans

8/26/19

Triff: God Bless your neighbor, I am so glad that he takes good care of you. Wish I were nearby to help!

Rich (lexx0)

From: Rich (lexx0)

8/26/19

Thank you, sweet Karen :D, I just keep getting virus or cold/flus from these hospital visits. Up all night coughing but I was riding yesterday in 69F, pretty cold in the face @ 70mph and I left without a helmet on. Today I barely got up and am off to midtown to meet a friend before he leaves for SanFran.  Been to WV 4 straight weekends but mom is able to walk now, just waiting for an infection to clear up in her shoulder where they opened her up to fix the broken bits.  She broke the humerus off the top of her arm bone!  Cleaning up bread crumbs.  I just can't be in 3 places at once.  At least she doesn't have to go to the nursing home though. Doctor was pissed as this is the 4th bone socket she busted, both shoulders, one hip and one knee, and 4 vertebrae and I've lost track of how many ribs.  Linda fell 3x's this week, 4 hours in medexpress twice and a slight fracture in her 'good' arm.  I'd laugh if I wasn't cryin'.  

Thank the dear Lord in Heaven for my Harley.  It gives me about 10 hours of vacation a week; :D

Richw

Rich (lexx0)

From: Rich (lexx0)

8/26/19

I know right?  When I bought my 2nd house on a deadend street all the neighbors were widows in 70-90's. Me, my next door neighbor and my kids kept their parking places shoveled and made sure they were all on their feet daily just in case.  Now my reward is Lisa takes care of me and my mother. She makes a lot of trips to WV just to do groceries and big box shopping for my parents.  Pay it forward :D

People can be good ;p

Rich

Rich (lexx0)

From: Rich (lexx0)

8/26/19

Oh speaking of my neighbor on that street, Jim the man that helped me alot and watched the street like a hawk passed away last week from leukemia, exact same AML strain that Linda has.  He never went into remission and only lived 10 months after diagnosis. He was 69. When I sold that house I had to pay for a radon gas exhaust system.  I told Linda's doctor this and they said it was no big deal or coincidence though.

Sad this man worked tirelessly, his wife was a shut-in and didn't drive, and his sons were allergic to lawn work. He'd work 60hrs a week, driving 2 hours a day, then take his wife grocery shopping, etc, then pull weeds and mow grass and manicure his front hill ivy.

This is the reason we quit folks, to try to stave off the reaper as long as you can. 70 years on this earth is nothing in the grand scheme.

Rich

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