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Valley of the Sun Quilters   Off-Topic Chat

Started 8/20/15 by KSCarolyn; 1839352 views.
LABFIEND

From: LABFIEND

Apr-15

Sandy in TX (Centergranny) said:

Of course it doesn’t take long to get things out of order, 

Isn't that the truth!!

Suze (casuzenn)

From: Suze (casuzenn)

Apr-16

Sending prayers Laura...odd that the genomics could not be read.. hope that gets resolved soon.

Cathy (cacnurse1)

From: Cathy (cacnurse1)

Apr-17

lppenguins said:

So I ran away from home for almost a week. Lol no one with me just me a huge house and quiet!

Sometimes we need that.  I can get some thinking space by going to my sewing room.  Bob does not venture there often.  You have a houseful to include your DGS.  Not much peace and quiet possible.  I've been thinking of your and sending prayers.  Let me know if there is anything I can do for you.

Cathy (cacnurse1)

From: Cathy (cacnurse1)

Apr-17

LABFIEND said:

Going to be there May 25 to June 1 or 2. Send if you want!!

Good to know.  I'll see if others have anything also.

LABFIEND

From: LABFIEND

Apr-17

And i was going to go early and stop by Prescott, but my son is coming out the weekend before, so Prescott trip is on hold, or maybe after I go to NM.

lppenguins

From: lppenguins

Apr-17

Thanks how is your treatment coming?  I hope and pray it’s not to much on you. 
it’s almost always best to just finally know, but still hard to deal. ♥?♥?♥?

lppenguins

From: lppenguins

Apr-17

Thanks Cathy, just being patient. I know that’s not like me. I move a mile a minute but I can’t do a thing so I’m keeping busy with my Sidney. One smile from him clears my mind. 

lppenguins

From: lppenguins

Apr-17

Thanks so much Ami, hopefully you’ll have good summer weather at your new place this summer.

Yup looking forward to t-shirts and shorts weather. 

Suze (casuzenn)

From: Suze (casuzenn)

Apr-18

lppenguins said:

how is your treatment coming?

well...it is kicking my butt...but seems to be working. I have had enough time to see the patterns of how my body reacts so I am devising strategies to deal with the side effects. Cycles are 21 days - 14 days of taking the main med, then 7 days off - also during the 14 days on - I get 4 shots of an immunomodulator - Mondays and Thursdays and that has the same rest period as the main medication. I take a high dose of steroid once a week and...gah...that has the WORST side effects AND..I have to take that even on the resting week.

Just when you start to feel a bit better, the cycle starts all over again. Saturdays and Sundays are relatively side effect free, Mondays and Tuesdays are just so-so, Wednesdays are the worst day (I have to eat something every hour or my blood sugar goes straight out the window), Thursdays and Fridays are a wee bit better , but still have major issues.

My M-Spike is lower so that is good - it was 0.75 last week before cycle 3 started. 

It turns out I have a couple of genetic abnormalities that they detected when they did a bone marrow biopsy on me - translocation of genes 11 and 14 and something called a monosomy on gene 13...  what that means, I am not too sure. But these abnormalities seem to be pretty common amongst those with Multiple Myeloma..

Did they do a bone marrow biopsy on you? 

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